Pengalaman keluarga yang baru pertama kali merawat penderita pasca-stroke di rumah

https://doi.org/10.22146/bkm.47936

Kadarwati Kadarwati(1*), Rahmi Ulfa(2), Elvi Oktarina(3)

(1) Prodi Magister Keperawatan, Fakultas Keperawatan Universitas Andalas
(2) Rumah Sakit Umum Daerah Dr. Rasidin, Padang
(3) Fakultas Keperawatan, Universitas Andalas
(*) Corresponding Author

Abstract


Family experience for the first time caring for post-stroke sufferers at home

Purpose: Neurological deficits of post-stroke patients have a negative impact on patients and families. To explore in-depth the experiences of families caring for post-stroke sufferers. 

Method: Qualitative research method using a descriptive phenomenology approach. Data of nine participants selected using purposive sampling. Data collected by interviews in-depth semi-structured duration of 60-90 minutes. Data analysis using the Colaizzi method.

Results: This study found five themes: dependence on daily activities in the family, efforts made by the family to fulfill self-care activities, constraints faced by caregivers, family expectations and limited knowledge and skills of caregivers.

Conclusion: Families experienced difficulties in meeting patients' ADLs. They have major changes in physical conditions, rest and sleep pattern, psychological conditions, social activities, and income opportunities. The families are in need of help from others and about how to treat post-stroke patients at home.


Keywords


families experience; to take care of; post-stroke sufferers

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References

  1. WHO. Stroke, Cerebrovascular Accident. In: WHO [Internet]. 2015. Available: https://www.who.int/topics/cerebrovascular_accident/en/
  2. Johnson W, Onuma O, Owolabi M, Sachdev S. Stroke: a global response is needed. Bulletin of the World Health Organization. 2016. pp. 634–634A. doi:10.2471/blt.16.181636
  3. Venketasubramanian N, Yoon BW, Pandian J, Navarro JC. Stroke Epidemiology in South, East, and South-East Asia: A Review. Journal of Stroke. 2017. pp. 286–294. doi:10.5853/jos.2017.00234
  4. O’Connell Smeltzer SC, Bare BG, Hinkle JL, Cheever KH. Brunner & Suddarth’s Textbook of Medical-surgical Nursing. Lippincott Williams & Wilkins; 2010.
  5. Tastekin N. Rehabilitation and Quality of Life in Stroke Patients. Türkiye Fiziksel Tip ve Rehabilitasyon Dergisi. 2015. pp. 97–98. doi:10.5152/tftrd.2015.001
  6. Hesamzadeh A, Dalvandi A, Maddah SB, Khoshknab MF, Ahmadi F, Arfa NM. Family caregivers’ experience of activities of daily living handling in older adult with stroke: a qualitative research in the Iranian context. Scandinavian Journal of Caring Sciences. 2017. pp. 515–526. doi:10.1111/scs.12365
  7. Kementerian Kesehatan Republik Indonesia. PISPK. In: PISPK [Internet]. [cited 2019]. Available: http://www.depkes.go.id/article/view/17070700004/program-indonesia-sehat-dengan-pendekatan-keluarga.html
  8. Ditjen Yankes. Perawatan Pasien Pasca Stroke di Rumah. In: Kemenkes RI [Internet]. [cited 2019]. Available: http://www.yankes.kemkes.go.id/read-perawatan-pasien-pasca-stroke-di-rumah-4143.html
  9. Gbiri CA, Olawale OA, Isaac SO. Stroke management: Informal caregivers’ burdens and strians of caring for stroke survivors. Annals of Physical and Rehabilitation Medicine. 2015. pp. 98–103. doi:10.1016/j.rehab.2014.09.017
  10. Gillard PJ, Ganapathy V, Graham GD, DiBonaventura MD, Goren A, Zorowitz R. Caregiver burden, productivity loss, and indirect costs associated with caring for patients with poststroke spasticity. Clinical Interventions in Aging. 2015. p. 1793. doi:10.2147/cia.s91123
  11. Daulay NM, Setiawan S, S NF. Pengalaman Keluarga sebagai Caregiver dalam Merawat Pasien Strok di Rumah. Jurnal Keperawatan Padjadjaran. 2014;2. doi:10.24198/jkp.v2i3.86
  12. Colaizzi P. Existential-phenomenological attentiveness for psychology. New York: Oxford University Press; 1978.
  13. Blessing M, Oluwagbemiga O. Effectiveness of Social Support in Coping with Stroke by Medically Ill Patient in Ibadan. International Journal of Neurorehabilitation. 2017. doi:10.4172/2376-0281.1000281
  14. Grant JS, Glandon GL, Elliott TR, Giger JN, Weaver M. Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month after discharge. International Journal of Rehabilitation Research. 2004. pp. 105–111. doi:10.1097/01.mrr.0000127639.47494.e3
  15. McCubbin HI. Integrating Coping Behavior in Family Stress Theory. Journal of Marriage and the Family. 1979. p. 237. doi:10.2307/351693
  16. Lutz BJ, Young ME, Cox KJ, Martz C, Creasy KR. The Crisis of Stroke: Experiences of Patients and Their Family Caregivers. Topics in Stroke Rehabilitation. 2011. pp. 786–797. doi:10.1310/tsr1806-786
  17. Lou M-F, Tsai P-C, Yip P-K, Tai JJ. Needs of family caregivers of stroke patients: a longitudinal study of caregivers’ perspectives. Patient Preference and Adherence. 2015. p. 449. doi:10.2147/ppa.s77713
  18. King RB, Ainsworth CR, Ronen M, Hartke RJ. Stroke caregivers: pressing problems reported during the first months of caregiving. J Neurosci Nurs. 2010;42: 302–311.



DOI: https://doi.org/10.22146/bkm.47936

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