Assessing the Impact of the AKU-DEMEN Collaborative Dementia Application on Patient Therapy Outcomes and Caregivers' Quality of Life and Satisfaction
Keywords:
Dementia, interprofessional collaboration, AKU-DEMEN, quality of life, caregiver satisfaction.
Abstract
Dementia is a global health problem, with cases increasing every year. Dementia therapy aims to prevent worsening so patients maintain cognitive function, activity, and quality of life. However, the disease is irreversible with a poor prognosis and requires complex care, making it a challenge to overcome. Interprofessional Collaboration (IPC) is an essential aspect of treatment, but effective collaboration frameworks are lacking. This study aims to analyze the impact of using the AKU-DEMEN application on patient therapy outcomes, both from the aspects of cognitive function, level of independence, quality of life of patients and their caregivers, and user’s satisfaction with using the application at the Memory Clinic of Dr. Sardjito Hospital. This study employed a quasi-experimental, one-group pretest-posttest design to evaluate the application's effectiveness in 80 eligible respondents. The instruments used included MoCa-Ina, Activities of Daily Living (ADL), Instrumental Activities of Daily Living (IADL), DEMQOL-proxy, WHOQOL-BREF, and paired sample t-test for data analysis. The level of caregiver’s satisfaction was measured with the Customer Satisfaction questionnaire and qualitative analysis using NVIVO 12 Plus. The results showed that the AKU DEMEN application was effective in maintaining therapy outcomes, both from the aspects of cognitive function, level of independence, and quality of life of patients, with no significant decrease (p-value ≥ 0.05) before and after using the application, as well as improving the quality of life of caregivers, especially in the psychological and social domains. The level of caregivers reached 79.22% (satisfied category), with the interprofessional collaboration message feature as the main advantage. In conclusion, the app provides significant benefits in supporting dementia care and is expected to continue to be used in clinical practice.
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Sittironnarit, G. (2020). Quality of life and subjective burden of primary dementia caregivers in Bangkok, Thailand. Asian Journal of Psychiatry, 48(December 2019), 101913. https://doi.org/10.1016/j.ajp.2019.101913
SMITH, S. C., LAMPING, D. L., BANERJEE, S., HARWOOD, R. H., FOLEY, B., SMITH, P., COOK, J. C., MURRAY, J., PRINCE, M., LEVIN, E., MANN, A., & KNAPP, M. (2007). Development of a new measure of health-related quality of life for people with dementia: DEMQOL. Psychological Medicine, 37(05), 737. https://doi.org/10.1017/S0033291706009469
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Suriastini, N. W., Turana, Y., Supraptilah, B., Wicaksono, T. Y., & Mulyanto, E. D. (2020). Prevalence and risk factors of dementia and caregiver’s knowledge of the early symptoms of alzheimer’s disease. Aging Medicine and Healthcare, 11(2), 60–66. https://doi.org/10.33879/AMH.2020.065-1811.032
Tumipa, Y., Bidjuni, H., & Lolong, J. (2017). HUBUNGAN DUKUNGAN KELUARGA DENGAN KEJADIAN DEMENSIA PADA LANSIA DI DESA TUMPAAN BARU KECAMATAN TUMPAAN AMURANG MINAHASA SELATAN. In Journal Keperawatan (e-Kp (Vol. 5, Issue 1).
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Zimmerman, M., Martinez, J. H., Young, D., Chelminski, I., & Dalrymple, K. (2013). Severity classification on the Hamilton depression rating scale. Journal of Affective Disorders, 150(2), 384–388. https://doi.org/10.1016/j.jad.2013.04.028
Aisy Sunaryo, S. R., Saifullah, A. D., & Mulyani, S. (2020). Knowledge and attitudes toward people with dementia among nursing students in Yogyakarta, Indonesia. Belitung Nursing Journal, 6(6), 196–202. https://doi.org/10.33546/BNJ.1178
Al Rasyid, I., Syafrita, Y., & Sastri, S. (2017). Hubungan Faktor Risiko dengan Fungsi Kognitif pada Lanjut Usia Kecamatan Padang Panjang Timur Kota Padang Panjang. Jurnal Kesehatan Andalas, 6(1), 49. https://doi.org/10.25077/jka.v6i1.643
Amri, L. F., & Renidayati, R. (2019). Efektifitas Edukasi Pada Caregiver Tentang Pengetahuan Kejadian Pengabaian Lansia. JIK- JURNAL ILMU KESEHATAN, 3(2), 130. https://doi.org/10.33757/jik.v3i2.241
Andrieu, S., Coley, N., Rolland, Y., Cantet, C., Arnaud, C., Guyonnet, S., Nourhashemi, F., Grand, A., & Vellas, B. (2016). Assessing Alzheimer’s disease patients’ quality of life: Discrepancies between patient and caregiver perspectives. Alzheimer’s and Dementia, 12(4), 427–437. https://doi.org/10.1016/j.jalz.2015.09.003
Ariska, Y. N., Handayani, P. A., & Hartati, E. (2020). Faktor yang Berhubungan dengan Beban Caregiver dalam Merawat Keluarga yang Mengalami Stroke. Holistic Nursing and Health Science, 3(1), 52–63. https://doi.org/10.14710/hnhs.3.1.2020.52-63
Budiman, S. V., Ratag, G. A. E., & Wahongan, G. J. P. (2023). Analisis Kualitatif Mengenai Persepsi dan Pengetahuan Masyarakat tentang Telemedicine. Medical Scope Journal, 4(2), 170–177. https://doi.org/10.35790/msj.v4i2.44858
Couture, M., Ducharme, F., Sasseville, M., Bradette, C., & Gaudet, K. (2020). A qualitative systematic review of factors affecting caregivers’ decision-making for care setting placements for individuals with dementia. Geriatric Nursing, 41(2), 172–180. https://doi.org/10.1016/j.gerinurse.2019.09.002
Deskianditya, R. B., Astuti, A., & Yudiyanta, Y. (2021). Caregiver’s burden and age are related determinants to quality of life in people with dementia. Journal of Community Empowerment for Health, 4(2), 94. https://doi.org/10.22146/JCOEMPH.60432
Fitriana, L. A., Ufamy, N., Anggadiredja, K., Setiawan, S., & Adnyana, I. K. (2019). Hubungan Tingkat Kemandirian (Basic dan Instrumental Activities of Daily Living) dengan Pendidikan, Status Marital, dan Demensia pada Lansia di Panti Wredha. Jurnal Pendidikan Keperawatan Indonesia, 5(2), 177–183. https://doi.org/10.17509/jpki.v5i2.21528
Haiga, Y., & Chaniago, R. S. (2024). Demensia. Scientific Journal, 3(5), 269–277.
Hayya, R. Q., Kusumaningsih, I., & Susilo, W. H. (2023). Pengaruh antara tingkat pengetahuan tentang demensia dengan pencegahan demensia pada lansia di RW 05 jatijajar. Carolus Journal of Nursing, 5(2), 135–145.
Hekmatpou, D., Baghban, E. M., & Dehkordi, L. M. (2019). The effect of patient care education on burden of care and the quality of life of caregivers of stroke patients. Journal of Multidisciplinary Healthcare, 12, 211–217. https://doi.org/10.2147/JMDH.S196903
Jumiarti, J., Suratmi, T., & Rahardjo, T. B. W. (2023). Beban Kerja Caregiver Dalam Mendampingi Lansia Dengan Demensia di Sasana Tresna Werdha RIA Pembangunan Jakarta Tahun 2022. Jurnal Untuk Masyarakat Sehat (JUKMAS), 7(1), 45–53. https://doi.org/10.52643/jukmas.v7i1.2560
Kahle-Wrobleski, K., Ye, W., Henley, D., Hake, A. M., Siemers, E., Chen, Y. F., & Liu-Seifert, H. (2017). Assessing quality of life in Alzheimer’s disease: Implications for clinical trials. Alzheimer’s and Dementia: Diagnosis, Assessment and Disease Monitoring, 6, 82–90. https://doi.org/10.1016/j.dadm.2016.11.004
Keumalasari, K., Yetti, K., & Hariyati, R. T. S. (2021). Penerapan Model Kolaborasi Interprofesional dalam Upaya Meningkatkan Keselamatan Pasien: a Systematic Review. REAL in Nursing Journal, 4(2), 65. https://doi.org/10.32883/rnj.v4i2.1222
Khemai, C., Meijers, J. M., Mujezinovic, I., Bolt, S. R., Pieters, S., Moser, A., Schols, J. M. G. A., & Janssen, D. J. A. (2022). Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers. Dementia, 21(6), 1890–1913. https://doi.org/10.1177/14713012221098259
Kumalasari, A. N., Rahmayani, F., & Hamidi, S. (2018). Diagnosis dan pencegahan perburukan demensia vaskular pada pasien pasca stroke. Medula, 8(1), 25–32.
Lestari, D. T., Jauhar, M., & Rahmawati, A. M. (2023). Dementia Care Class Meningkatkan Sikap Caregiver Informal dalam Perawatan Demensia Berbasis Masyarakat. Jurnal Litbang: Media Informasi Penelitian, Pengembangan Dan IPTEK, 19(2), 99–112. https://doi.org/10.33658/jl.v19i2.344
Lestari, S., & Mustofa, C. H. (2016). Faktor Yang Mempengaruhi Kepatuhan Penderita Tbc Untuk Minum Obat Anti Tuberkulosis (Factors contributing patiens’ compliance with Anti Tuberculostatic Drug Therapy). MOTORIK Jurnal Ilmu Kesehatan, 1(2).
Lou, Q., Liu, S., Huo, Y. R., Liu, M., Liu, S., & Ji, Y. (2015). Comprehensive analysis of patient and caregiver predictors for caregiver burden, anxiety and depression in Alzheimer’s disease. Journal of Clinical Nursing, 24(17–18), 2668–2678. https://doi.org/10.1111/JOCN.12870
Nindela, R., Yusril, Y., Marisdina, S., Junaidi, A., Okparasta, A., & Anggraeni, D. (2023). Skrining kognitif pada dewasa dan lansia di Kelurahan Gunung Ibul Kota Prabumulih. Jurnal Pengabdian Masyarakat: Humanity and Medicine, 4(2), 90–105. https://doi.org/10.32539/hummed.v4l2.126
Pratiwi, D., Indarwati, R., & Tristiana, R. D. (2021). Factors Associated to Positive Aspects in Caregiving for People Living with Dementia in Family Caregivers. Media Keperawatan Indonesia, 4(2), 149. https://doi.org/10.26714/mki.4.2.2021.149-163
Purba, N. F., Annisa, F. S., Syafitri, A., & Purba, S. H. (2024). Pemanfaatan teknologi digital dalam pelayanan kesehatan publik: Sebuah tinjauan analisis kebijakan. Jurnal Kesehatan Unggul Gemilang, 8(6).
Putra, D. K. (2024). Pengembangan Aplikasi Berbasis Mobile untuk Peningkatan Layanan Kesehatan. Circle Archive 1, 1(16).
Rajagukguk, N. (2018). Tingkat Demensia dengan Tingkat Aktivitas Dasar Sehari-hari pada Lansia. Jurnal Ilmiah Ilmu Keperawatan Indonesia, 7(04), 322–331. https://doi.org/10.33221/jiiki.v7i04.73
Sari, L. K., & Hilmi, I. L. (2022). PENINGKATAN DEMENSIA MELALUI ROKOK : LITERATURE REVIEW IMPROVEMENT OF DEMENTIA THROUGH CIGARETTE : LITERATURE REVIEW PENDAHULUAN Demensia merupakan sindrom kronis yang menyebabkan penurunan fungsi kognitif yang dapat mempengaruhi memori , tingkah laku , c. Farmasetis, 11(3), 195–200.
Shabrina, A., Purboningsih, E. R., & Widiastuti, T. R. (2020). Gambaran kesejahteraan subjektif pada perempuan dewasa yang merawat orang tua dengan demensia. Jurnal Psikologi Ulayat, 8, 195–226. https://doi.org/10.24854/jpu149
Sharma, N., Chakrabarti, S., & Grover, S. (2016). Gender differences in caregiving among family - caregivers of people with mental illnesses. World Journal of Psychiatry, 6(1), 7. https://doi.org/10.5498/wjp.v6.i1.7
Shim, Y. S., Park, K. H., Chen, C., Dominguez, J. C., Kang, K., Kim, H. J., Hong, Z., Lin, Y. Te, Chu, L. W., Jung, S., & Kim, S. Y. (2021). Caregiving, care burden and awareness of caregivers and patients with dementia in Asian locations: a secondary analysis. BMC Geriatrics, 21(1). https://doi.org/10.1186/S12877-021-02178-X
Singh, A., Gupta, A., Collins, B. L., Qamar, A., Monda, K. L., Biery, D., Lopez, J. A. G., de Ferranti, S. D., Plutzky, J., Cannon, C. P., Januzzi, J. L., Di Carli, M. F., Nasir, K., Bhatt, D. L., & Blankstein, R. (2019). Familial Hypercholesterolemia Among Young Adults With Myocardial Infarction. Journal of the American College of Cardiology, 73(19), 2439–2450. https://doi.org/10.1016/j.jacc.2019.02.059
Sittironnarit, G. (2020). Quality of life and subjective burden of primary dementia caregivers in Bangkok, Thailand. Asian Journal of Psychiatry, 48(December 2019), 101913. https://doi.org/10.1016/j.ajp.2019.101913
SMITH, S. C., LAMPING, D. L., BANERJEE, S., HARWOOD, R. H., FOLEY, B., SMITH, P., COOK, J. C., MURRAY, J., PRINCE, M., LEVIN, E., MANN, A., & KNAPP, M. (2007). Development of a new measure of health-related quality of life for people with dementia: DEMQOL. Psychological Medicine, 37(05), 737. https://doi.org/10.1017/S0033291706009469
Sumarni, N., Rosidin, U., & Sumarna, U. (2019). Hubungan Demensia dan Kualitas Hidup pada Lansia di Wilayah Kerja Puskesmas Guntur. Ejournal.Bsi.Ac.Id, VII(1), 1–6.
Suriastini, N. W., Turana, Y., Supraptilah, B., Wicaksono, T. Y., & Mulyanto, E. D. (2020). Prevalence and risk factors of dementia and caregiver’s knowledge of the early symptoms of alzheimer’s disease. Aging Medicine and Healthcare, 11(2), 60–66. https://doi.org/10.33879/AMH.2020.065-1811.032
Tumipa, Y., Bidjuni, H., & Lolong, J. (2017). HUBUNGAN DUKUNGAN KELUARGA DENGAN KEJADIAN DEMENSIA PADA LANSIA DI DESA TUMPAAN BARU KECAMATAN TUMPAAN AMURANG MINAHASA SELATAN. In Journal Keperawatan (e-Kp (Vol. 5, Issue 1).
Untari, I., Subijanto, A. A., Mirawati, D. K., & Sanusi, R. (2021). The montreal cognitive assessment (MoCA-Ina) versus the mini-mental state examination (MMSE-Ina) for detecting mild cognitive impairment among the elderly. Bangladesh Journal of Medical Science, 20(1), 164–169. https://doi.org/10.3329/bjms.v20i1.50364
Utami, P., Rahmawati, F., Astuti, & Zullies Ikawati. (2024). Development of the smartphone application for patients with dementia: a literature review. Indonesian Journal of Pharmacology and Therapy, 5(1). https://doi.org/10.22146/ijpther.9596
Widodo, S. M., & Sutopo, J. (2018). Metode Customer Satisfaction Index (CSI) Untuk Mengetahui Pola Kepuasan Pelanggan Pada E-commerce Model Business to Customer. Jurnal Informatika Upgris, 4(1), 38–45.
Zimmerman, M., Martinez, J. H., Young, D., Chelminski, I., & Dalrymple, K. (2013). Severity classification on the Hamilton depression rating scale. Journal of Affective Disorders, 150(2), 384–388. https://doi.org/10.1016/j.jad.2013.04.028
Published
2025-06-19
How to Cite
Utami, P., Rahmawati, F., Ikawati, Z., & Astuti, A. (2025). Assessing the Impact of the AKU-DEMEN Collaborative Dementia Application on Patient Therapy Outcomes and Caregivers’ Quality of Life and Satisfaction . Indonesian Journal of Pharmacy. https://doi.org/10.22146/ijp.20449
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Research Article
