Family-centered rehabilitation in high risk infant; A case report
Lulus Hardiyanti(1*), Rizky Kusuma Wardhani(2), Aditya Rifqi Fauzi(3), . Gunadi(4)
(1) Physical Medicine and Rehabilitation Division, Department of Surgery, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada/Dr. Sardjito General Hospital, Yogyakarta,
(2) Department of Physical Medicine and Rehabilitation, Faculty of Medicine Universitas Indonesia/ Dr. Cipto Mangunkusumo General Hospital, Jakarta
(3) Pediatric Surgery Division, Department of Surgery, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada/Dr. Sardjito General, Hospital, Yogyakarta, Indonesia
(4) Pediatric Surgery Division, Department of Surgery, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada/Dr. Sardjito General, Hospital, Yogyakarta, Indonesia
(*) Corresponding Author
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Natarajan G, Shankaran S. Short- and long-term outcomes of moderate and late preterm infants. Am J Perinatol 2016; 33(3):305-17.
https://doi.org/10.1055/s-0035-1571150
2.Sharma D, Padmavathi IV, Tabatabaii SA, Farahbakhsh N. Late preterm: a new high risk group in neonatology. J Matern Fetal Neonatal Med 2019; 34(16):2717-30.
https://doi.org/10.1080/14767058.2019.1670796.
3.Handayani KD, Irwanto, Masturina M, Etika R, Harianto A, Sauer PJJ. Duration of breastfeeding in LPIs maternal and infant factors. J Hum Lact 2021; 37(4):795-802.
https://doi.org/10.1177/0890334420978380
4.Kinney HC. The Near-term (late preterm) human brain and risk for periventricular leukomalacia: a review. Semin Perinatol 2006; 30(2):81-8.
https://doi.org/10.1053/j.semperi.2006.02.006
5.Cheong JL, Doyle LW, Burnett AC, Lee KJ, Walsh JM, Potter CR, et al. Association between moderate and late preterm birth and neurodevelopment and social-emotional development at age 2 years. JAMA Pediatr 2017; 171(4):e164805.
https://doi.org/10.1001/jamapediatrics.2016.4805
6.Tripathi T, Dusing SC. Long-term neurodevelopmental outcomes of infants born late preterm: a systematic review. Res Rep Neonatol 2015; 2015:91-111.
https://doi.org/10.2147/RRN.S44062
7.Turner KM, Lee HC, Boppana SB, Carlo WA, Randolph DA. Incidence and impact of CMV infection in very low birth weight infants. Pediatrics 2014; 133(3):e609-15.
https://doi.org/10.1542/peds.2013-2217
8.Lanzieri TM, Leung J, Caviness AC, Chung W, Flores M, Blum P, et al. Long term outcome of children with congenital CMV infection. J Perinatol 2017; 37(7):875-80.
https://doi.org/10.1038/jp.2017.41
9.Lanzieri TM, Dollard SC, Bialek SR, Grosse SD. Systematic review of the birth prevalence of congenital cytomegalovirus infection in developing countries. Int J Infect Dis 2014; 22:44-8.
https://doi.org/10.1016/j.ijid.2013.12.010
10.Noyola DE, Demmler GJ, Nelson CT, Griesser C, Williamson WD, Atkins JT, et al. Early predictors of neurodevelopmental outcome in symptomatic congenital cytomegalovirus infection. J Pediatr 2001; 138(3):325-31.
https://doi.org/10.1067/mpd.2001.112061
11.Beckers LWME, Geijen MME, Kleijnen J, Rameckers EAA, Schnackers MLAP, Smeets RJEM, et al. Feasibility and effectiveness of home-based therapy programmes for children with cerebral palsy: A systematic review. BMJ Open 2020; 10(10):e035454.
https://doi.org/10.1136/bmjopen-2019-035454
12.An M, Palisano RJ. Family-professional collaboration in pediatric rehabilitation: a practice model. Disabil Rehabil 2014; 36(5):434-40.
https://doi.org/10.3109/09638288.2013.797510
13.Pekcici EBB, Akin EO, Akpinar F, Hayran G, Keleş C, Yağbasan B, et al. Family-centeredness of services for young children with down syndrome: an observational study from turkey. Turk J Med Sci 2021; 51(1):246-55.
https://doi.org/10.3906/sag-2009-76
14.Wu Z, McGoogan JM. Characteristics of and important lessons from the Coronavirus disease 2019 (COVID-19) outbreak in China: ssummary of a report of 72314 cases from the Chinese Center for Disease Control and Prevention. JAMA 2020; 323(13):1239-42.
https://doi.org/10.1001/jama.2020.2648
15.King G, Chiarello L. Family-centered care for children with cerebral palsy: conceptual and practical considerations to advance care and practice. J Child Neurol 2014; 29(8):1046-54.
https://doi.org/10.1177/0883073814533009
16.Almasri NA, An M, Palisano RJ. Parents’ perception of receiving family-centered care for their children with physical disabilities: a meta-analysis. Phys Occup Ther Pediatr 2018; 38(4):427-43.
https://doi.org/10.1080/01942638.2017.1337664
17.Ziegler SA, Hadders-Algra M. Coaching approaches in early intervention and paediatric rehabilitation. Dev Med Child Neurol 2020; 62(5):569-74.
https://doi.org/10.1111/dmcn.14493
18.Tomblin JB, Harrison M, Ambrose SE, Walker EA, Oleson JJ, Moeller MP. Language outcomes in young children with mild to severe hearing loss. Ear Hear 2015; 36(Suppl 1):76S-91S.
https://doi.org/10.1097/AUD.0000000000000219
19.Korver AMH, Smith RJH, van Camp G, Schleiss MR, Bitner-Glindzicz MAK, Lustig LR, et al. Congenital hearing loss. Nat Rev Dis Primers 2017; 3:16094.
https://doi.org/10.1038/nrdp.2016.94
20.Shevell M, Oskoui M, Wood E, Kirton A, van Rensburg E, Buckley D, et al. Family-centred health care for children with cerebral palsy. Dev Med Child Neurol 2019; 61(1):62-8.
https://doi.org/10.1111/dmcn.14053
21.Kokorelias KM, Gignac MAM, Naglie G, Cameron JI. Towards a universal model of family centered care: A scoping review. BMC Health Serv Res 2019; 19(1):564.
https://doi.org/10.1186/s12913-019-4394-5
22.Çelik S, Tomris G, Tuna DM. The COVID-19 pandemic: The evaluation of the emergency remote parent training program based on at-home support for children with down syndrome. Child Youth Serv Rev 2022; 133:106325.
https://doi.org/ 10.1016/j.childyouth.2021.106325
23.Chandolias K, Tsigaras G, Besios T, Chalkia A, Trevlaki E. The impact of the COVID-19 pandemic on the rehabilitation of children with chronic diseases and disabilities. J Health Sciences & Research 2021; 11(1):190.
DOI: https://doi.org/10.19106/JMedSci005404202209
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